9:21pm October 22, 2014

Well that was interesting.

So sub floaters (people who do substitute caregiving duties for the local DD agency when the person’s regular caregivers are out sick or something) all have to be trained in my care, because a nurse has to teach them some stuff, and then also my staff have to teach them the regular routine. It’s gotten so that some of the subs are just as good at it as the regular staff, and that’s how it should be. Usually isn’t that way, but should be that way.

Anyway I was asked if I’d be willing to have a new sub floater shadow recently, and I said it was fine with me. When the person walked in… sometimes you can just look at someone and know within an instant that they’re a geek. And it was like that. So the person and I geeked out about a bunch of things the entire shift.

And then it turns out they have myasthenia gravis, too. And so we had that in common, and that was really weird because it’s not a disease that people normally have. And then it turned out we were diagnosed by the same neurologist. (The only reason the topic came up at all was because they saw the bottles of Mestinon sitting around, and Mestinon only really exists to treat one disease, so yeah. This person turns out to be in clinical trials for a drug that would affect the immune system without full-out suppressing it the way CellCept does. I hope those trials go well because CellCept makes me incredibly uneasy.)

So I may occasionally have a geek with myasthenia gravis working with me, and that’s really cool.

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