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9:13pm March 4, 2015

I know some of you hate saying “butt pill”, so I came up with a compromise, and it’s still not working.

They are supposed to call and prompt me to take my butt pill.

Some of them are highly uncomfortable with the word “butt pill”, I don’t know why,it’s a pill that goes up your butt, can’t get more direct than that.  So they say “Have you taken your medications?”

When people say “medications”, my brain automatically goes to the long, long process of preparing and administering a coctkail of meds into my j-tube.  Then I go to the bathroom (because I can’t do that for awhile after the butt pill goe in), then I take the butt pill, and Melatonin, and hook up my tube feed to thepump, and strap my bipap mask on, and hopefully sleep after a little bit of computer time with the screen dimmed and color-changed to sunset colors by a program called f.lux.

Anyway, so I need something specific to “butt pill”.  So I gave them these choices:

  1. Butt pill
  2. Phenergan
  3. Promethazine
  4. Phenadoz
  5. Suppository

Suppository comes last because it’s one of those words that slides off my brain and is hard for me to dig meaning out of.  The rest are names of the drug, usually known as anti-nausea or antihistamine, but it’s also a neuroleptic (antihistamines and neuroleptics are often closely related, or even the same,

But they still only ever say “butt pill” or “medications’. Staff hearing it on speaker phone sometimes laugh about it, like "That one guy will never say ‘butt’ in mixed company, I think”  But it’s also a serious problem,because of the peculiarities of my receptive language.

Oh well.  I do miss butt pills sometimes this way.  I wake up severely nauseated, often wondering why.  I guess I’ll have to discuss this again with my  case manager.

Which reminds me, after year and a half of problems with scheduling and communication, the agency has finally conceded that it may take my case manager a long time to learn these things, if he ever does.  They may just be his weak points.  So I now have two case managers from now on.  Each will handle things the other one can’t do well.  I’m excited.

And I hope that one or the other can get Safety Connections sorted out as to this “butt pill” thing.

Notes:
  1. withasmoothroundstone posted this