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10:31pm March 19, 2015
Anonymous asked: I'm sorry you took that completely the wrong way. I'm also chronically ill. Gastro Paresis, had part of my pancreas removed for cancer, epilepsy, chronic migraines & I had a stroke that left me unable to care for myself. Having someone come wash and braid my hair and do those things makes me feel more normal and not like I'm swirling in a toilet waiting to die. It's a huge thing to have someone come help me with those things and makes me feel better. I was trying to help. I wasn't judging you.

I actually thought you might be disabled as well, that’s why I answered at all.  But my answer would be about the same either way:  I do take care of myself, my hair just isn’t my top priority when I have norovirus.  And it only takes a day or two for my hair to get so out of sorts that it can take weeks to get it back again.  Other people usually don’t have the patience to care for my hair once it’s tangled, they tell me it’s impossible and to cut it off.  I know, however, that if I pull one strand at a time, I can get iet pretty well untangled.

For me, it’s not my hair that makes me feel better.  It’s getting back into my own clothing.  My dad died in November, and he left me a huge amount of his clothing, and the moment I go home all i could think about was getting some of his old clothes on.  That’s how I’ve been mourning him, by wearing his clothes.  I can’t even imagine when, or whether, I’m going to stop wearing his clothes.  But I try to wear something of his every day, and my mother keeps sending more, which is great.  I’m discovering I look good in orange, not a color I’m used to, but my father wore a lot of it so I’ve got some of his orange shirts.  (Alas, I crapped all over one, so now I have to wash it a zillion times to see if it comes out or not.)

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  1. withasmoothroundstone posted this