as small as a world and as large as alone

7:10pm July 29, 2015

deafcecil:

so! i finally made a group for people with Ehlers-Danlos Syndrome who are also, in any way, members of the LGBTQ+ community!

anyone is welcome to join, regardless of whether you are officially or self diagnosed with EDS! all you have to do is join on Facebook – the group is set so that you can join but no one in your friends list will be able to see what you post in it. 

A lot of EDS groups are filled with cishet people, and it can make it pretty hard to express ourselves fully, or be understood in the intersections of EDS and queer/trans life we experience. 

the group can be found here! it’d be great if you could reblog this to signal boost, so as many folks can find it as possible! :) 

Are queer people with hypermobility syndrome who’re unsure if it’s EDS welcome?  (I know that some doctors consider all hypermobility syndrome a form of EDS and others don’t.  I’m diagnosed with hypermobility syndrome but have never been tested for EDS, although plenty of things beyond joint hypermobility run in the same parts of the family that the hypermobility runs in, like organ prolapse and aortic aneurysms and stuff, so we know there’s some kind of connective tissue thing but we don’t have a specific diagnosis beyond HMS.)

Either way, signal boosting.

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