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7:27am February 7, 2012
netbug009: aimez-vous: Today, I met a very special girl. I was at the mall with my brother shopping and while we were at the food court, we saw this little girl. Her name is Hana. She is THE ONLY person in California who is diagnosed with Progeria. Just last night we found out about her, and watched her videos all over tumblr & youtube. We approached her at the mall today, and I started talking to her. She was very tiny, and very soft spoken,  She was telling my brother and I how she met Selena Gomez and how she made the little bracelet for her. She even gave my mom a kiss on the cheeks. AND YES SHES ALIVE. People started a nasty rumor last night that she has passed away, obviously it is NOT true since we met her 2 hours ago. And ITS spreading. She was with her teacher, and we exchanged emails. She personally asked my brother & I to spread it all over that she is alive and well, so here I am trying helping out.  I will post the email her teacher sent me soon. If you could please reblog and help Hana out, and spread the word that she is alive & well, please reblog this regardless that it wont match your tumblr theme. Lets help her out, and encourage her to stay strong. Also reblogging to raise awareness of progeria, seeing how I’d never heard of this before now.  Reblogging so people know she’s alive. Also to note how disturbed I was when I found a news story on progeria on YouTube. One of the first things the newscaster said was that they were going to tell us how parents found the courage to love children who would die so soon. I felt awful when they said that. I’ve known plenty of parents of people with even shorter life expectancies and love is the norm, not the exception. And when you treat love like the exception… just eww, that can get really disturbing to anyone with the condition in question. (I know this as a disabled person myself and hearing that parents are extraordinary for providing ordinary levels of love and other standard parent things, to people like me.)

netbug009:

aimez-vous:

Today, I met a very special girl. I was at the mall with my brother shopping and while we were at the food court, we saw this little girl. Her name is Hana. She is THE ONLY person in California who is diagnosed with Progeria. Just last night we found out about her, and watched her videos all over tumblr & youtube. We approached her at the mall today, and I started talking to her. She was very tiny, and very soft spoken,  She was telling my brother and I how she met Selena Gomez and how she made the little bracelet for her. She even gave my mom a kiss on the cheeks. AND YES SHES ALIVE. People started a nasty rumor last night that she has passed away, obviously it is NOT true since we met her 2 hours ago. And ITS spreading. She was with her teacher, and we exchanged emails. She personally asked my brother & I to spread it all over that she is alive and well, so here I am trying helping out.  I will post the email her teacher sent me soon.

If you could please reblog and help Hana out, and spread the word that she is alive & well, please reblog this regardless that it wont match your tumblr theme. Lets help her out, and encourage her to stay strong.

Also reblogging to raise awareness of progeria, seeing how I’d never heard of this before now. 

Reblogging so people know she’s alive. Also to note how disturbed I was when I found a news story on progeria on YouTube. One of the first things the newscaster said was that they were going to tell us how parents found the courage to love children who would die so soon. I felt awful when they said that. I’ve known plenty of parents of people with even shorter life expectancies and love is the norm, not the exception. And when you treat love like the exception… just eww, that can get really disturbing to anyone with the condition in question. (I know this as a disabled person myself and hearing that parents are extraordinary for providing ordinary levels of love and other standard parent things, to people like me.)

Notes:
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