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10:33am February 29, 2012

But anyway, we have seen a few discussions going around lately about how non-autistic professionals tend to say autism is about impaired socialization, “theory of mind,” stereotyped repetitive behaviors, etc. While autistic people say that it’s about profound differences in cognition, perception, and communication. (And often the autistic people disagreeing with the professionals about this, are the ones who’ve been labeled as severely affected or low-functioning or thought by other people at some point in their life to be incapable of understanding what was going on around them. And no, these things are not mutually exclusive with having been labeled high-functioning, mildly affected, etc at some other point in a person’s life.)

And… one other thing we’ve noticed is this:

Autistic people who believe that autism is primarily a deficiency in social skills, “theory of mind,” etc, often tend to be more unhappy than autistic people who believe (as we do) that the most important aspects of it are profound differences in perception, cognition, and communication. To actually have a lower “quality of life,” when it comes to what they want versus what they have.

And this probably has a lot to do with the fact that they have been taught to believe that their entire life is going to consist of trying to strive after Almost Normal even though they will never quite get all the way there.

— amorpha&, Things that make us headdesk (reading the whole thing is good for context)