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2:17pm March 6, 2012

Fuck the entire concept of money.

So with a cost of living increase in my RSDI(*) payments, I’m a few dollars over the line where they no longer pay my Medicare premiums. So now I have to pay an extra hundred dollars every month. Which means this feeble attempt by the government to adjust for an increased cost of living? In practice, makes me poorer.

In October, I had an IUD inserted. This is because I don’t have my period. And the lining in there just builds up and builds up without coming out. Which is a big risk for cancer, which runs in my family. Oral hormone pills barely create a period at all, and give me horrific migraines. The IUD gave me one huge massive period for a long time – showing the hormones weren’t doing crap before – and then it’s stopped and I feel great.

My gynecologist neglected to tell me that Medicare doesn’t pay for IUDs. Even for serious medical reasons like, oh, preventing cancer.

So now I’m $1400 in debt, in addition to the $100ish a month to Medicare. And I doubt they’ll let me do the payment plan that is actually right for my current income.

Fuck fuck fuck fuck fuck. Fuck the system, fuck money, fuck everything that practically seems to conspire to make sure disabled people can barely afford to eat. I’ve known since I was a kid that this is no way to run the world but it’s only getting worse.

.

(*) Most people know of SSI and SSDI. I’m in a weird little program with weird little requirements. You had to be on SSI. And have been disabled before the age of 22. And have a parent die, retire, or become disabled. And then you get something called Disabled Adult Child benefits (it has lots of other names). Where no matter how much income you have you still qualify for Medicaid (in certain states), but you have Medicare as well starting after a couple years.

And the income you get is called RSDI – Retirement Survivors and Disability Insurance. And there are weird little sets of rules that apply only to DAC, but most people in the system don’t know them and try to tell me I’m on SSDI. Which has totally different rules. And every once in awhile they try to cancel my Medicaid and I have to sic Legal Aid on them because nobody listens to a retard, even one who tells them exactly what page of the Medicaid manual to turn to. And Medicaid is important because that’s where my services come from. And for a program disproportionally involving people with developmental disabilities it’s ridiculously complicated to understand. And not understanding can get you in trouble.