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12:41am July 23, 2012

Do people ever actually not feel like getting up?

josiahd:

thebestspecialsignalieverheard:

selfguided-autistic:

I hear people say this all the time but I’ve never really understood what it’s like.  I’m very lazy, but I’ve never been too tired to actually get up.  It seems so easy that it’s hard to believe it actually takes energy.  Is this a “just me” thing or is it just an expression?

It’s depression.

Or, sucking at maintaining a sleep cycle.

Or severe inertia. Which can be a component of autism, catatonia, Parkinson’s, apraxia, and other similar movement disorders. (There’s a different kind of inertia with depression. I can’t describe the difference but I’ve lived both and it’s different as night and day.)

Or anything which causes severe physical fatigue or muscle weakness. Which is a huge range of conditions. I’ve sometimes been too weak to breathe properly, speaking of things that supposedly take no effort. It’s a really disturbing feeling to realize your oxygen has dropped to 83 because you’re too tired to breathe right. (I have a bipap machine that I can use at times like that to avoid ER trips.)

Or anything that causes severe chronic pain. Also a huge range.

Or other things that make the physical act of getting out of bed a huge ordeal. Sometimes you just sit on the edge of your bed (if you have even gotten to that point) and the couple feet between your bed and the wheelchair looks like the Grand Canyon.

I have a hard time imagining getting out of bed not being a huge ordeal. It didn’t always used to be but that was before I acquired a combination of conditions that put me in bed pretty much 24/7. As in, where I often have to limit bathroom trips if I don’t want to be completely immobilized. And when I rarely go out it’s in a wheelchair tilted back like a bed almost. Most people I know who are in the same boat, we tend to find that lots of things that shouldn’t be tiring, are – not just physical activities but cognitive and sensory ones can cause a physical level of exhaustion once you get to this point.