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4:31pm February 4, 2013

Brief body overview

Now I am under blankets, curled up, somewhat cold but still cozy. Bed is not a bad place to be when it’s 20 degrees with wind I can hear whistling by the window hard enough to move my curtains with the window closed. Especially since I just got bathed and that was cold.

Completely worn out from the bath though. The kind of worn out where my eyes are half shut and my bipap is making me less out of breath. I wonder if nondisabled people even know what this kind of worn out means. My guess is it’s hard for them to imagine even while exhausted, because it takes it to a different level. It takes less to wear me out, there are many different kinds of being worn out both local and global, and the fact of being worn out happens in more extreme ways. It makes accurate communication about it very difficult.

There’s also pain. The stuff I’m thinking of is maybe on the severe end of moderate, or the low end of severe? It’s still joints, like last night. From the cold probably. And from all that bending and turning for the LNA. I don’t have arthritis that I am aware of, but I have plenty other reasons my joints don’t like me.

And there’s something I actually want to write about, but maybe better make it a different post.