Theme
12:48pm February 17, 2013

➸ felis corvus: Vaso-what?

feliscorvus:

clatterbane:

feliscorvus:

(I wrote on dreamwidth about this privately a while back so it might be somewhat redundant to some people, but I wanted to write about it here now I’m more comfortable discussing the subject. Just in case it’s useful to anyone else with body-awareness issues, etc.)


So, when I was little, somehow…



I only read about this a few days ago on DW, and didn’t have the spoons to comment then. But, it sounds way too familiar. Not so much the fascination with fainting when younger, but a history of very similar experiences that I never really connected to fainting.

It was only once I started reading up more on hypermobile type EDS (my bendiness fits the criteria), that I ran across all kinds of people discussing the dysautonomia symptoms, including what you’re describing. No clue previously that this was what feeling faint was actually like, especially since a lot of my dad’s family does the same thing and never described the episodes that way. But, very interesting posts.

Whoah, okay, if there’s a hypermobility connection here…that is VERY interesting. I have never been diagnosed with EDS or similar, but I’ve always been weirdly super-bendy and have a history of stuff like randomly dislocating my elbow as a baby (which freaked the hell out of my parents), being able to do the splits without any practicing, being able to put both legs behind my head as a teenager, having my hips get all screwed up and possibly subluxated from long-distance walking, so yeah. Thanks for mentioning that, because it would definitely explain a lot if there were a correlation between bendiness and vasovagal susceptibility. I.e., connective tissue weirdness going along with vascular/nerve weirdness.

That is really interesting to me too. Because my family then has a combination of two separate things that can be linked with autonomic issues. One is parkinsonlike conditions (we seem to get several variants). The other is hypermobility/connective tissue stuff. Also FYI hypermobility is linked with lack of usual sensitivity to novocaine.

But yeah. My mom is diagnosed with a whole slew of things including autonomic failure. She’s been to the Mayo clinic and they’re fiddling with all kinds of diagnoses and medications. I have many similar symptoms to her but some of mine are more severe, in other areas hers are more severe. I’ve been diagnosed once with argh can’t remember the name, the one that means my stomach is partly paralyzed. They’re going to test me soon to see if that’s really the cause, but at any rate that’s one of several other autonomic-type things, and often linked to the vagus nerve. Gastroparesis, that’s the word. Don’t like words today.

It’s weird how so many things are linked. But then my family seems to have the capacity to come up with more conditions than is comfortable.