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1:05pm February 28, 2013

It says a lot.

That my idea of a holiday feast this year was to drink a bit of thin soup that tastes exactly like stuffing. Wait a couple hours. Then drink a bit of soup that tasted like pumpkin pie. And that got me as stuffed as my friend who was pigging out on a multi-course meal she cooked.

Although I’m still really happy someone is bothering to make me soup for all occasions. I think it’s saving my sanity because three flavors of Ensure isn’t enough particularly when my favorite flavor is umami, not sweet. She says if I ever have to go to full time feeding tube, I can still put soup in my mouth and spit it out.

Doctors don’t seem so concerned with the psychological or social impact of not eating solid food, they just focus on the nutritional impact. Hell, a lot of doctors I talk to barely acknowledge that for most people with GP, the main symptom that bothers us is severe nausea, not just not being able to eat. I talked to a doctor when I was in the hospital who actually outright told me “The main thing with gastroparesis is people quit eating because their stomach doesn’t empty enough, many don’t have nausea.” Yet I’ve never read anything by a person with GP, who didn’t mention nausea as the main thing preventing eating. It’s like all he could see were objective symptoms and didn’t grasp the subjective feelings (or the vomiting) that really keep us from eating. WTF.