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6:12pm March 14, 2013

Feeding tubes.

So I saw my doctor this week or was it last week. Effing memory problems.

But anyway I did see him. And we spent awhile talking about what to do if I ever come close to needing a feeding tube again like I almost did this fall.

I am so glad he respected my choices. I’ve had a nasogastric tube before and my autistic reflexes almost made me rip the thing out. I managed to get through that autistic sensory issues are more than just “nobody likes nasogastric tubes”.

So despite possible complications we decided it would be feeding by PICC line until a j-tube or something similar could be put in.

And… I hate to even have this conversation, it makes me very nervous. But I kind of feel more comfortable having had it. I’d hate to have them shoving an NG tube in without even discussing it with me, or having it be up to some idiot straight out of his residency who wouldn’t care about safety. My DPA made it quite clear if they did an NG tube they’d have to sedate me into near unconsciousness to keep me from ripping it out without even wanting to.