10:43am July 6, 2013

➸ "You don't need this junk. You need a cat.": Why my body is the center of a giant ear?

youneedacat:

clatterbane:

youneedacat:

Some days, I can just feel my body not functioning right. I’m exhausted, my stomach feels all wrong, and everything hurts.

Of course my body is trying very hard to function, or I wouldn’t be here at all. That’s where I differ from people who, trying to be inclusive towards disabled people, make…

#chronic illness#disability#Momo#listening#body awareness#awareness#noticing the world around me#giant ear

And, once again, much better than I could have put it.

Really? Wow, wasn’t really expecting people to like that post. Was afraid people would think I was trying to romanticize illness, or something. Rather than just trying to express the truth of what my life has worked like.

!!!

Anyone who tells a spoonie they’re romanticizing their own illness will get… glared at. I haven’t the energy got worse than that.

This is a great post and it has me thinking. …I don’t think I ever really hate my body, but I bounce between cheering it on and being thoroughly out of patience with it. And I’m less patient with it when I’m doing better actually because when I don’t feel too awful I keep thinking I ought to get more done.

This is a good reminder that the body is doing a lot, as well as it can, even when all I experience is sitting around and playing clickygames.

Yeah I know it’s a bad accusation to make. But a lot of people really believe it’s impossible for there to be any good side to it for anyone. Or that the idea that illness can ever, for anyone, cause any increase in depth, character, strength, connection to the world, etc. is always just a harmful myth made up by nondisabled people to make themselves feel better. So I was surprised anyone took it well.

Notes: