as small as a world and as large as alone

9:30pm August 10, 2013

flaresof-fibro:

Why is a chronic illness shitty?

Because it is chronic, not lethal.You have to live through it, find a way to cope everyday, work out how to do as much as you can to make life meaningful….without tipping over your body into meltdown.

We get better days, but it is still chronic. It doesn’t leave, it just stays with us in a variety of strengths. You don’t know how your body is going to handle tomorrow.

I’d rather chronic than lethal any day.

(Says the person with chronic illness that might turn lethal. With a mother in a similar boat, who’s been refused care before because “you’ll die anyway so it doesn’t matter.”)

Chronic illness is still shitty though either way. I’d just way rather be alive and ill than dead. And in the society we live in now, anything that could even slightly convince healthy people that death is better, is a serious danger to sick people. And may even contribute to situations like when doctors thought it was better to let me die than get my feeding tube.

So even though I know what they were trying to say, I’ll always comment on posts that could be taken as saying that death would be better. To counteract any messages people may get.

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