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8:25pm August 15, 2013
adventuresofasickgirl: People are tube fed for many different reasons. I have Eosinophilic Esophagitis a rare autoimmune disease. I am 100% tube fed. Many people don’t know what to say to people when they see someone with something coming out their nose or have a backpack with a tube going up their shirt, well truth is we’re just like any other person you see. We just eat a little different. Just because we have a tube doesn’t mean we’re contagious. You won’t catch what we have. Stop the stigma against feeding tubes. We just want to live normal lives and have fun like everybody else. Reblog and spread the word awareness is key to acceptance :) One of the worst prejudices for me (Also 100% tube fed, gastroparesis, GJ tube) has been the way people, including medical professionals, often believe that once you become a tubie your life is over or might as well be over. My life is far from over. I wouldn’t HAVE a life if I didn’t have a tube. And the “better dead than tube fed” mentality almost prevented me from getting my tube in the first place. I love my tube. I love being alive. I love every day of life my tube gives me. Even shitty days like today. Nobody has the right to decide my tube makes my life not worth living.

adventuresofasickgirl:

People are tube fed for many different reasons. I have Eosinophilic Esophagitis a rare autoimmune disease. I am 100% tube fed. Many people don’t know what to say to people when they see someone with something coming out their nose or have a backpack with a tube going up their shirt, well truth is we’re just like any other person you see. We just eat a little different. Just because we have a tube doesn’t mean we’re contagious. You won’t catch what we have. Stop the stigma against feeding tubes. We just want to live normal lives and have fun like everybody else. Reblog and spread the word awareness is key to acceptance :)

One of the worst prejudices for me (Also 100% tube fed, gastroparesis, GJ tube) has been the way people, including medical professionals, often believe that once you become a tubie your life is over or might as well be over.

My life is far from over. I wouldn’t HAVE a life if I didn’t have a tube. And the “better dead than tube fed” mentality almost prevented me from getting my tube in the first place. I love my tube. I love being alive. I love every day of life my tube gives me. Even shitty days like today. Nobody has the right to decide my tube makes my life not worth living.

Notes:
  1. mypotsielife reblogged this from faithsangel1
  2. raiceylee13 reblogged this from faithsangel1
  3. faithsangel1 reblogged this from adventuresofasickgirl and added:
    This is gonna be me in a few months time Looking forward to this so much
  4. celiaoftheseals reblogged this from ohmerciannashabtai
  5. ohmerciannashabtai reblogged this from adventuresofasickgirl and added:
    My 8 year old nephew also has EE. He’s the epitome of a boy his age. But people freak out when they see his feeding...
  6. hatred-beloved reblogged this from adventuresofasickgirl
  7. auti-stim reblogged this from withasmoothroundstone
  8. sophine reblogged this from coffeecatscake
  9. a-mead-gal reblogged this from maggiemunkee
  10. maggiemunkee reblogged this from fogblogger
  11. knoptu-rabbit reblogged this from justfarmerjenny
  12. justfarmerjenny reblogged this from coffeecatscake
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  14. coffeecatscake reblogged this from fogblogger
  15. graphicallyill reblogged this from fogblogger
  16. fogblogger reblogged this from rainbowrosepetals
  17. l0uenthusiast reblogged this from meowie
  18. meowie reblogged this from shoushoude
  19. shoushoude reblogged this from rainbowrosepetals and added:
    I don’t have a feeding tube but I’ve noticed this horrible stigma in various parts of the medical community and...
  20. surfercharlie13 reblogged this from badhouses
  21. anachronisticmayhem reblogged this from atalantapendrag
  22. fibromyalgialife reblogged this from badhouses