7:43am August 17, 2013

Nausea and pain. Nausea and pain. Nausea and pain.

This week is taking its toll.

Both the exertion from the doctors appointments, and all the water and feedings I’ve missed as a result.

There’s searing pain everywhere. The deep aches in my joints but worse the fiery zapping along the surface.

I have to be air conditioned. Have to. Because heat exhaustion set in yesterday.

But.

The cold air makes my skin burn. I am trying to deflect it with bed sheets. I feel dry everywhere. But I’m too worn out to get up and put water in my tube.

And I’m losing a lot of water too because my stomach decided to produce so much fluid that I almost threw up last night just ten minutes after draining my g tube and taking Zofran, Phenergan, and Benadryl for nausea. It’s been like this for days and getting worse.

My overnight drainage bag is almost full. It’s this weird dark color I can’t tell if it’s green or brown. If I don’t wear the drainage bag pretty much all the time I feel like throwing up. Hell if I do wear it I am pretty nauseated, just not in throwing up territory.

And I’m an expert at avoiding barfage. A childhood as an emetophobe and six nausea meds plus the ability to drain my stomach on command mean I’ve got pretty good self control.

But this week seems to be kicking my butt. Although I’m impressed that I could do it at all. Not safely. But the Mestinon must be working because I’ve been stronger. So much stronger that most of the doctors I saw noticed it and commented!  So mostly the problems have been exhaustion, overload, and pain, but for once not much weakness. Unfortunately exhaustion overload and pain are plenty enough.

I hope I can rest this weekend and get back to normal. My mom is visiting for a little while and I want to have energy for that.

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