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6:20am September 7, 2013

Owwwwwwww

So basically.

I’m trying to do a bit more.

Now that I’m on Mestinon and have increased muscle stamina.  Which means I’m no longer collapsing in a liquid heap on the floor after doing such extraordinary activities as moving around my house too much.

But I’ve had this back pain for years. Have intended to get it checked out at the pain clinic but keep ending up on antibiotics which are incompatible with the procedure to figure it out.

And normally it ranges from maybe 4 to 6.

And tonight it’s in the 7-8 range.  And I keep feeling really really weird sensations in my back.

This is upper back pain and now it’s setting off my neck pain.

I don’t know where this came from. I first remember it in 1999. I was told to bend over. When I bent over and touched the floor I was told I was too flexible to have back pain. Surprise, years later I find out I have hypermobility syndrome, which causes flexibility, and joint pain.  Then I was sent to a therapist who said it was a spiritual problem manifesting as a physical problem. But it isn’t.

Anyway it went away, or at least faded into the background, for years. And then it came back. And stayed. And stayed. And stayed.

And whatever it is, I really screwed it up last night and my back still hurts in ways that make me unsure if I really want to know what’s going on in there, or not.

It’s basically centered around one specific spot. Sometimes that spot is all that hurts. Sometimes it goes all the way up my neck. It used to sometimes go downward from that spot too. But now it only goes upward.

That horrible therapist had a chart that showed what it supposedly meant about me spiritually, depending on where exactly it hurt that day,  and what positions I contorted myself into to get rid of the pain. I’m really, really glad to see the back of her.  But I only saw her because my doctor told me it wasn’t real pain because I was flexible.