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5:26pm September 7, 2013

➸ Urocyon's Jaunts: Owwwwwwww

youneedacat:

So basically.

I’m trying to do a bit more.

Now that I’m on Mestinon and have increased muscle stamina. Which means I’m no longer collapsing in a liquid heap on the floor after doing such extraordinary activities as moving around my house too much.

But I’ve had this…

Yep I bet most of those things are factors. I actually have visibly reduced range of motion in my neck on one side now, but it’s still way more than most people would have in similar situations.

And it turns out the lung capacity thing runs in the family. My brother’s highest peak flow is over 900. Mine is 770. 400 for most people my age is good, for me it’s a crisis, but people don’t get it.

My brother thanked me for writing about it though. Because it really helped him when he ran into trouble with doctors over the same issue. He wouldn’t have even known about it if I hadn’t said something.