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10:01am September 8, 2013

➸ Urocyon's Jaunts: Owwwwwwww

clatterbane:

youneedacat:

youneedacat:

So basically.

I’m trying to do a bit more.

Now that I’m on Mestinon and have increased muscle stamina. Which means I’m no longer collapsing in a liquid heap on the floor after doing such extraordinary activities as moving around my house too much.

But I’ve had this…

Yep I bet most of those things are factors. I actually have visibly reduced range of motion in my neck on one side now, but it’s still way more than most people would have in similar situations.

And it turns out the lung capacity thing runs in the family. My brother’s highest peak flow is over 900. Mine is 770. 400 for most people my age is good, for me it’s a crisis, but people don’t get it.

My brother thanked me for writing about it though. Because it really helped him when he ran into trouble with doctors over the same issue. He wouldn’t have even known about it if I hadn’t said something.

Yeah, the lung capacity (rather predictably) goes along with the big rib cages in my family. Plenty of room for lungs in there. 

In the crap asthma treatment files, I have only had them measure my peak flow rate once that I remember, actually the last time I had to go in with a bad exascerbation from a cold. (My O2 saturation was low enough that they wouldn’t let me leave the office and drive home until I got a nebulizer treatment that time—and I didn’t even feel that bad compared to how passing-out sick I’ve gotten with it before.) And I was too sick and panic-attacky to pay attention to the numbers. But, I have been told that I have about twice the expected lung capacity. Good if you want to take up long-distance running or not get so much altitude sickness, not so good if you want them to take your breathing problems seriously. :/

Yeah and what scares me is apparently when they take a pulmonary function test, they compare it to national norms or something rather than to what you personally should be like. So what if your lungs naturally come out ahead of national norms? It would take them much longer to figure out when something is wrong.