Theme
7:37pm October 30, 2013
ivegotagutfeeling: I have started Reglan. Ugh, hate this medication. The worst is the itching, which I am still trying to verify is actually from the Reglan. Almost certain it is at this point.  Then the bathroom issues. How can it make my colon empty quicker but my poor stomach still not emptying right. Ugh.  It’s pretty bad, so much so that I fear to go out while on the medication.  Not sure I can stay on it. But what other medication is there? One does not work, Reglan causes bad side affects, and another is not available. in the US.  Hope to talk to the doctor this week.  You can also lower your dose of the stuff. I can’t take the full dose of Reglan – I get terrible akathisia.  (Where you get an uncontrollable urge to thrash around.)  So I take half the dose and at most I get super-mild akathisia that merely makes me want to stretch over and over and over without any relief.  But that’s far more tolerable. And while there are no other medications in America that will help your stomach empty faster, there are medications that can help with symptoms such as nausea.  Counting Reglan, I think I’m on six nausea medications. There’s also the stomach pacemaker, if you can manage to get approved for it. And after that it’s just things that deal with symptoms.  I don’t have a pacemaker but I do have a feeding tube.  I can eat and I don’t aspirate bile anymore, and it’s cut my nausea in half, even though it doesn’t solve the underlying problem.  (Feeding tubes don’t work perfectly for everyone, and can sometimes cause more problems, but they do work for a lot of people.)  One half of it (g-tube) lets me drain fluid and air from my stomach (it’s a process involving actual active effort, not just opening it and letting it drain), and the other half of it (j-tube) puts food into my intestines so that my stomach doesn’t have to deal with it.  But it’s basically cut my nausea in half and let me drastically reduce my dosage of nausea meds.  And quite often when I’m severely nauseated all I have to do is drain the g-tube and the nausea reduces to a more manageable level. I know that part isn’t really a treatment of the disease, nor are the nausea meds, but without the feeding tube and the nausea meds I’d be in the hospital all the time, if I was still alive at all.

ivegotagutfeeling:

I have started Reglan. Ugh, hate this medication. The worst is the itching, which I am still trying to verify is actually from the Reglan. Almost certain it is at this point. 

Then the bathroom issues. How can it make my colon empty quicker but my poor stomach still not emptying right. Ugh. 

It’s pretty bad, so much so that I fear to go out while on the medication. 

Not sure I can stay on it. But what other medication is there? One does not work, Reglan causes bad side affects, and another is not available. in the US. 

Hope to talk to the doctor this week. 

You can also lower your dose of the stuff.

I can’t take the full dose of Reglan – I get terrible akathisia.  (Where you get an uncontrollable urge to thrash around.)  So I take half the dose and at most I get super-mild akathisia that merely makes me want to stretch over and over and over without any relief.  But that’s far more tolerable.

And while there are no other medications in America that will help your stomach empty faster, there are medications that can help with symptoms such as nausea.  Counting Reglan, I think I’m on six nausea medications.

There’s also the stomach pacemaker, if you can manage to get approved for it.

And after that it’s just things that deal with symptoms.  I don’t have a pacemaker but I do have a feeding tube.  I can eat and I don’t aspirate bile anymore, and it’s cut my nausea in half, even though it doesn’t solve the underlying problem.  (Feeding tubes don’t work perfectly for everyone, and can sometimes cause more problems, but they do work for a lot of people.)  One half of it (g-tube) lets me drain fluid and air from my stomach (it’s a process involving actual active effort, not just opening it and letting it drain), and the other half of it (j-tube) puts food into my intestines so that my stomach doesn’t have to deal with it.  But it’s basically cut my nausea in half and let me drastically reduce my dosage of nausea meds.  And quite often when I’m severely nauseated all I have to do is drain the g-tube and the nausea reduces to a more manageable level.

I know that part isn’t really a treatment of the disease, nor are the nausea meds, but without the feeding tube and the nausea meds I’d be in the hospital all the time, if I was still alive at all.