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3:07am November 2, 2013

Question for everyone autistic (anywhere on the spectrum), whether officially diagnosed or self-diagnosed I don’t care.

How many of you have lost important abilities for a significant length of time, quickly or slowly, any time from puberty to old age?  (Sometimes called “regression” or “burnout” or “long-term shutdown”.)

It can be speech, language, the ability to move, executive function, organizational skills, self-care skills, academic skills, sensory and perceptual issues, cognitive abilities, anything connected with autism.  (And by that I mean connected in your eyes, not necessarily connected in the eyes of people who really narrowly think “everything about autism is social skills problems”.)

I’m trying to find out even a low estimate of how many people this has happened to, because I’ve been talking to someone who never heard of things like this until she talked to me and I’m not sure how much she believes me, and it’s kind of important.

Notes:
  1. awkwardaspie reblogged this from autism-is-the-answer
  2. autism-is-the-answer reblogged this from lipstickautistic
  3. xhxixdxdxexnx reblogged this from lipstickautistic
  4. inchoategirl reblogged this from jgamer-aspie
  5. jgamer-aspie reblogged this from lipstickautistic
  6. neurosocialist reblogged this from lipstickautistic and added:
    i guess kinda, yeah, i guess just executive function in general
  7. skullbuddies reblogged this from lipstickautistic
  8. kitriv reblogged this from lipstickautistic and added:
    I suffered autistic regression about a year ago, since then I’ve been unable to work and none of my abilities have...
  9. lipstickautistic reblogged this from withasmoothroundstone
  10. sarurunkamui reblogged this from withasmoothroundstone
  11. skypalacearchitect reblogged this from skypalacearchitect and added:
    Edit: I just remembered that even writing emails has become substantially harder. i’m still able to do it, but it takes...
  12. anarcistnobody reblogged this from withasmoothroundstone
  13. crydreaming reblogged this from withasmoothroundstone and added:
    I lost my executive function, organisation and self care skills and a lot of my academic skill for at least 6 months...
  14. wifemomartist reblogged this from withasmoothroundstone and added:
    almost ten years ago i had an office job (for nine months), i drove myself to work (about 4 miles away), and even though...
  15. theobserversoutpost reblogged this from laughingmyaspergersoff
  16. walkingsaladshooterfromheaven reblogged this from withasmoothroundstone and added:
    I lost a lot of my ability to use complex language. But it’s gradually coming back.
  17. typesetjez reblogged this from withasmoothroundstone
  18. laughingmyaspergersoff reblogged this from withasmoothroundstone and added:
    I actually have a post planned about regression relating to time-telling.
  19. bona34 reblogged this from withasmoothroundstone
  20. ajax-daughter-of-telamon reblogged this from greeneyedzengirl and added:
    My executive functioning has gotten worse, I think.
  21. greeneyedzengirl reblogged this from anonymousrandomramblings and added:
    These kinds of things have been, and continu to happen to me. I was informally diagnosed last year, and Jan 10th of this...
  22. mrsnaylswildride reblogged this from withasmoothroundstone and added:
    Wow. I can’t express how glad and relieved I am to have found this post. I’ve been having this very experience for a few...
  23. themathieautie reblogged this from withasmoothroundstone and added:
    I have imagined this happening to one or more of us several times. For reasons I don’t understand. I didn’t think it...