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11:55pm December 14, 2013

cfconfessions:

“Sometimes my cf just doesn’t make sense. It just doesn’t add up and I can’t get answers. When I feel bad my pfts are fine. When I feel great my pfts are low. I cough up blood. One doctor tells me it’s my lungs another says it’s sinuses. I’m just tired of always wondering. My doctors don’t listen to me when I say I feel good. They only believe my pfts. It’s like they don’t wanna pay attention to my health personally. They only do what helps cfers "statistically” even if it doesn’t work for me.“

-Anonymous

I notice there are a lot of medical professionals who put tests before they put what people say about our experiences.  My health has been badly damaged by such assumptions many times.

Notes:
  1. cystercynthia said: YUP! I struggled with this too. It took me blowing up & making a scene for my dr. to trust my word.
  2. missleaves reblogged this from withasmoothroundstone