1:33pm December 18, 2013

Phew.

So…

I’m back from the second doctor appointment this week.  Exhausted, but here.  That man was not a grim reaper.

Between both of my doctors this week, they’ve picked out someone who might be a good neurologist for me, because clearly my migraine doctor’s not qualified to handle neuromuscular disease/possible-myasthenia.  My doctor’s going to do a lot of feeling out before he lets me see anyone, and leave all the final decisions in his own hands.  So if the guy turns out to be a jerk, my GP will be on my side.  Which is a relief.  I’ve had mixed experience with neurologists in the past, some of which has delayed treatment for real, obvious, physical conditions I have.  Some of which has just been strange (my current neurologist is a headache doctor, and he thinks every symptom I have in any part of my body is a result of migraine) . But my GP and my pulmonologist are both concerned that many of my breathing issues should be addressed now, in terms of neuromuscular issues, just so we’re not blindsided by something getting suddenly worse, as my body has a tendency to do.

This is the sort of thing that I have to figure out on my own time, and I don’t enjoy or appreciate pressure in this department, given everything at stake.

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