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5:11am February 5, 2014

Okay so I got home last night.

Basically they want to wait on further testing, they said it could be so many things that they can’t really know unless they see me while it’s happening.  They questioned my evening staff person pretty extensively, who’s seen a much less severe version of the same thing.  So my support staff have instructions to detect this and call 911 immediately if they see it happening.  But other than that, I have ACTH testing next week, and they want me to follow up with my neurologist in case it’s neuromuscular or seizure-related.