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1:51am February 7, 2014

So the ACTH stim test is tomorrow.

There’d better be a doctor at this one.

And I find myself praying they find something obviously wrong.  Which is an odd thing to want.  But if they find something.  That means they can fix it.  And if these episodes are related to cortisol levels.  Then after I start treatment I might never have another again.  So I want to find something, and I want to get into treatment for it, at this stage.

I imagine anyone with an undiagnosed chronic illness can understand this kind of perverse desire when getting tested for things.

It is not pleasant, at all, to wake up and be too weak to move, for a long time.  With your head flopped on your chest or to the side.  They could be right, it could be adrenal, it could be a seizure, it could be a symptom of my possible myasthenia.  But tomorrow we are tracking adrenal problems, and that’s what I hope we find out of the three because it’s the most treatable.