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1:01pm February 7, 2014
Getting ready for the test, the IV inserted well on the first time, some kind of miracle.  I’m crocheting (I have like seven balls of yarn in my crochet box) and waiting for the procedure to start.  The doctor won’t be my GP, so I don’t know why last time he insisted it had to be him. Maybe he felt like he had to hand-pick the doctor rather than trust a resident. Anyway my greatest hopes here are: 1.  They’ll find something obvious that’s wrong. 2.  It’ll be treatable. 3.  It’ll stop these horrible episodes where I get too weak to lift my head and keep falling asleep or passing out and can barely move my arms or breathe.  (I was told next time I should experiment with my legs to see if my legs are affected too.  I bet they are, but I’ve never thought to try so far.) I know it is weird to want a test to find something wrong.  A healthy person might not understand that.  But when you have something going terribly wrong and you don’t know what it is, you want answers, no matter how bad the answer might be in the end.  And the problem they’re suspecting (adrenal insufficiency or something like that) is treatable, and the treatment mind end a very terrifying experience I’m having more and more often, before that experience turns into a true nightmare. So yes, I want it to be wrong, so that we can make it right. Here’s the test I’m getting: http://en.wikipedia.org/wiki/ACTH_stimulation_test

Getting ready for the test, the IV inserted well on the first time, some kind of miracle.  I’m crocheting (I have like seven balls of yarn in my crochet box) and waiting for the procedure to start.  The doctor won’t be my GP, so I don’t know why last time he insisted it had to be him. Maybe he felt like he had to hand-pick the doctor rather than trust a resident.

Anyway my greatest hopes here are:

1.  They’ll find something obvious that’s wrong.

2.  It’ll be treatable.

3.  It’ll stop these horrible episodes where I get too weak to lift my head and keep falling asleep or passing out and can barely move my arms or breathe.

 (I was told next time I should experiment with my legs to see if my legs are affected too.  I bet they are, but I’ve never thought to try so far.)

I know it is weird to want a test to find something wrong.  A healthy person might not understand that.  But when you have something going terribly wrong and you don’t know what it is, you want answers, no matter how bad the answer might be in the end.  And the problem they’re suspecting (adrenal insufficiency or something like that) is treatable, and the treatment mind end a very terrifying experience I’m having more and more often, before that experience turns into a true nightmare.

So yes, I want it to be wrong, so that we can make it right.

Here’s the test I’m getting:

http://en.wikipedia.org/wiki/ACTH_stimulation_test