7:04pm March 7, 2014

I’d wondered for awhile…

…about the difference between my symptoms and my mother’s symptoms. We both have symptoms of a neural junction disorder of some sort.  And we both have a combination of general fatigue, and weakness in specific muscles when we use them too much.

But I have more severe general fatigue, and less severe specific muscle fatigue.  And she has more severe specific muscle fatigue, and less severe general fatigue.  

She doesn’t have adrenal insufficiency.  She’s been given the same tests I have.  I do have adrenal insufficiency.  That pretty much explains the difference, I think.

So what I’m guessing is I have a mild to moderate neural junction disorder and she has a moderate to severe one, and mine was being made much worse by the adrenal insufficiency (just like all of my health conditions suddenly got worse at once at that point in time).

But we’ll see once I get to a neurologist.

One of the biggest problems I face with doctors is they tend to like seeing one disease at a time.  So they make pronouncements about how my symptoms don’t fit with _______ disease, because I have symptoms that can’t be accounted for _______ disease.  This even though we’ve already proven I have a cluster of different diseases, not one disease.  They still want to find one disease that explains everything, and if it doesn’t explain everything then it must be a misdiagnosis.  Which is weird, given how rare it is for a person with significant health problems to have only one underlying condition.

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