as small as a world and as large as alone

I use a communication device.  Usually I type into a computer (using Proloquo), and sometimes I use picture symbols on an iPad (using Proloquo2Go) if I can’t type.  

I usually type out a list of my concerns beforehand and then play each one out loud, that way I don’t take up time typing during the appointment, except for spontaneous stuff that can’t be done any other way.  I also always bring someone with me to the appointment to help me remember things (my memory for things like what happens in appointments really sucks) and to help me communicate if I can’t communicate something.  Also to back me up if the doctor doesn’t trust what I’m saying, and to advocate for me if I can’t advocate for myself.

I’m part of a group though (AASPIRE) that is putting together a tool to make communication between autistic people and our doctors easier.  It basically takes all your concerns about accessibility and such and prints out a letter for your doctors to read.  I would love to use that once it becomes more widely available.

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