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2:03pm July 28, 2014

Holy crap…

I just realized that if I do have myasthenia gravis, it might explain a lot of things.  Including…

When I was 19, I started having this problem where I’d get really weak sometimes I’d fall, lots of other things.  But the thing I’m remembering that I never connected to it at all.  Was that my speech would get so slurred that it was impossible for even close friends to understand it.  One of my friends said it was like I got “instant cerebral palsy” or something, from the way I sounded.  It was very severe.

And now that I don’t speak at all (for reasons unrelated to MG), I don’t notice whether my speech is going to be slurred or not.  So I totally forgot that was a symptom.  But for a couple years when I was still speaking part-time, I’d sometimes end up with speech so incomprehensible that friends would tell me to use my keyboard even when I could technically talk, because the keyboard voice was more understandable than my voice.  (Which given that it was old-school DECTalk, is saying something.)

I wish I remembered to tell my neurologist this stuff.  There’s other stuff I know I told my case manager to put on the list to tell him, that didn’t make it onto the list.  Like the right-sided drooling.  And the way my head tilts to one side.  And other stuff.