5:22pm
August 19, 2014
“To the world (by world I mean tumblr): This month is gastroparesis awareness month. I was diagnosed with this disease 3 years ago. I have vomited, been in extreme pain, experienced consistent nausea, and bowel issues on almost a daily basis. I have a gastric pacer, a j-tube for tube feeding, and a g tube to vent my stomach. My life as a whole is incomparable to the life I once had. I can’t eat anything without vomiting; this includes jell-o, broth, soup, sometimes water, juices, any solid foods. This is why I rely on my tube feed for nutrition. Even with the tube I don’t get enough calories due to the slow rate the formula goes into my intestine. Gastroparesis has paralyzed my stomach and it’s slowed down my intestines. I am usually dehydrated, exhausted, and bordering on a hospital stay. I have been in the hospital close to 100 days in the past 3 years. I know more nurses and doctors than I do students on campus at my university. I have had to withdraw from school several semesters bc I get admitted to the hospital and miss too many classes. I have very few friends bc I am unable to do many activities and I end up canceling last minute. People only accept the ‘I’m sick’ excuse so many times; even though they know it’s the truth. I try to stay strong despite the extreme consequences this disease has on me. I still attempt to take classes in order to finish my degree. I try very hard to adhere to my doctors medical plans for me in hopes that one day the symptoms will get a little better. I do what I can each day and take joy in the simple moments of life: playing music, learning and reading, petting my dog, appreciating nature. I wouldn’t wish this disease on anyone, but I know there are many others out there who experience these same symptoms. That’s why this year I want to spread awareness. I’m not looking for pity; just a quick moment to share my story and allow people a small glimpse into the life of someone with gastroparesis.”
— MeNotes:
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hold-hope-and-courage said: Your determination and fighting spirit, despite the awful extent of your gastroparesis, is admirable girl. It’s ok to let people in to what goes on behind that beautiful, contagious smile :). I love you so much.
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