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12:00am August 24, 2014

bittersnurr:

i spent all day reading transcripts of conference lectures on mito and all I have learned is:

  1. I am SUPER mito with all my fucking symptoms I am learning about how symptoms I didn’t know were mito are mito. Everything is mito your face is mito
  2. my very birth was a risk factor for mito
  3. I am being definitely undertreated and all sources agree this is making me worse
  4. I am fucked because I’ve already tried like every treatment they have listed

WHOOPS what a productive day in depressing myself

Fuck.

Regarding stopped stomachs, I’m far from fucked yet.  Who knows about the future, but for right now, I’m alive and kicking.  And feeling like kicking the ass of anyone who either:

1.  Said I didn’t need the tube.

2.  Said I couldn’t take care of the tube

3.  Said I would have too low quality of life with the tube

4.  Said death was better than tubes

One of my friends wants me to send all my doctors postcards of me doing amazing shit every year since I got the tube, and sign them “Your Worthless Life”.

Some days I feel that defiant, some days I don’t, but fuck am I not going down without a fight.  I know that sounds cliche, but… fuck.  Sometimes cliches are there for a reason.  And every person who has ever either doubted the severity of my situation, or said that my situation is in fact so severe that I might as well die… well I have choice words for them.

Notes:
  1. familiaralien said: ;A; oh my. Btw does Kat have a good article about her condition because G wishes to better understand what’s going on.
  2. bittersnurr reblogged this from withasmoothroundstone and added:
    well i meant fucked because doctors haven’t even MENTIONED it as a possibility yet and when I joked about being halfway...
  3. withasmoothroundstone reblogged this from bittersnurr and added:
    Fuck. Regarding stopped stomachs, I’m far from fucked yet. Who knows about the future, but for right now, I’m alive and...
  4. tarvalonsjw said: sometimes reading up on our diseases is super educational. a lot of times all it does is make you want to crawl in a hole and die and never get out because what is even the point anymore nobody wants to/can help. YAY.