as small as a world and as large as alone, clatterbane: youneedacat: ...

1:12pm September 2, 2014

$clatterbane: youneedacat: mrsnobodyjustawifejustamum: The many stages of…….#invisibleillness #chronicpain when trying to sleep - now if you believe #itsreal xx (at Simply Living xx - Centre For Lifestyle. & Wellness) This is sort of me right now. I slept for awhile (by my standards — about 3 hours) but I woke up in nasty pain, and here I am. Except I can’t even get into most of those positions because I’m not allowed to lie flat, ever, because it’s an aspiration risk. So my tossing and turning ability is quite limited because I sleep (and do everything else) sitting with my back up. That sounds like it would make things even more awkward and uncomfortable. My tossing and turning positions aren’t nearly as limited, though I can’t really lie on my back with the damned persistent sacral fracture. Sometimes I will wake up that way anyway, and it’s not good. (To the point that it will wake me up.) Also a lot more prone to asthma attacks on my back. When that’s really acting up from a cold or flu are the only times I have needed to sleep propped mostly sitting up, and that’s never been good for restful sleep especially with painful subluxating ribs from the hellacious coughing. It’s hard to ease pressure on whatever is hurting, IME. Maybe you would get a little more used to that kind of position over time. I hope so. Yeah I’m used to it. Also I have a pillow under me that has a cutout for my tailbone so I don’t get pressure sores there. It took awhile to find a pillow rated for a high enough weight that it wouldn’t just flatten. (I found I had to get a pillow rated for twice my weight, because apparently they lie about their ratings?) I did finally get back to sleep last night, then slept all morning, too. Without the bipap, which was not refreshing, but also allowed me to avoid aspirating, so…$

clatterbane:

youneedacat:

mrsnobodyjustawifejustamum:

The many stages of…….#invisibleillness #chronicpain when trying to sleep - now if you believe #itsreal xx (at Simply Living xx - Centre For Lifestyle. & Wellness)

This is sort of me right now. I slept for awhile (by my standards — about 3 hours) but I woke up in nasty pain, and here I am. Except I can’t even get into most of those positions because I’m not allowed to lie flat, ever, because it’s an aspiration risk. So my tossing and turning ability is quite limited because I sleep (and do everything else) sitting with my back up.

That sounds like it would make things even more awkward and uncomfortable. My tossing and turning positions aren’t nearly as limited, though I can’t really lie on my back with the damned persistent sacral fracture. Sometimes I will wake up that way anyway, and it’s not good. (To the point that it will wake me up.) Also a lot more prone to asthma attacks on my back. When that’s really acting up from a cold or flu are the only times I have needed to sleep propped mostly sitting up, and that’s never been good for restful sleep especially with painful subluxating ribs from the hellacious coughing. It’s hard to ease pressure on whatever is hurting, IME. Maybe you would get a little more used to that kind of position over time. I hope so.

Yeah I’m used to it. Also I have a pillow under me that has a cutout for my tailbone so I don’t get pressure sores there. It took awhile to find a pillow rated for a high enough weight that it wouldn’t just flatten. (I found I had to get a pillow rated for twice my weight, because apparently they lie about their ratings?)

I did finally get back to sleep last night, then slept all morning, too. Without the bipap, which was not refreshing, but also allowed me to avoid aspirating, so…

Notes: