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1:17am August 4, 2015

seeklight:

This is my favorite cat of Instagram

6:34am April 8, 2015
alittlepieceofinsane:This isn’t some tan girl covered in makeup with perfectly straight hair and a perfect smile. This is a girl with Pfeiffer Syndrome, who has had bangs her whole life to hide her forehead and struggles everyday to be okay with looking this way. She’s had several surgeries and will have a couple more. she can’t wear makeup much, her eyes are sensitive. Her jaw is misaligned. Her forehead is too thick and has to be shaven down. Her cheekdowns have to be moved forward by surgery. when she was four she had something called a ‘halo’ which was a metal circle screwed into her skull and jaw.though she fought through it medically, she struggles everyday with the emotional sideeffects. she doesn’t look like her family or her friends. she may never look normal. she has depression and eating issues because of what she has had to accept about herself. she has done awful things to be pretty.nobody ever sees her without makeup or without bangs. until now. She, is me. and if I make your blog ugly, than don’t reblog this. but if you can be one of the few people in my life who I know are fully comfortable with it, than reblog this so people know. you are beautiful. even if you don’t realize it, you are. everyone is,

alittlepieceofinsane:

This isn’t some tan girl covered in makeup with perfectly straight hair and a perfect smile. This is a girl with Pfeiffer Syndrome, who has had bangs her whole life to hide her forehead and struggles everyday to be okay with looking this way. She’s had several surgeries and will have a couple more. she can’t wear makeup much, her eyes are sensitive. Her jaw is misaligned. Her forehead is too thick and has to be shaven down. Her cheekdowns have to be moved forward by surgery. when she was four she had something called a ‘halo’ which was a metal circle screwed into her skull and jaw.

though she fought through it medically, she struggles everyday with the emotional sideeffects. she doesn’t look like her family or her friends. she may never look normal. she has depression and eating issues because of what she has had to accept about herself. she has done awful things to be pretty.

nobody ever sees her without makeup or without bangs.

until now.

She, is me.

and if I make your blog ugly, than don’t reblog this. but if you can be one of the few people in my life who I know are fully comfortable with it, than reblog this so people know.

you are beautiful. even if you don’t realize it, you are. everyone is,

3:39pm August 19, 2014
Annnnnd with a great deal of effort, I got the cannula hooked up. (The problem is I have to switch back and forth between hooking the oxygen concentrator tube to the bipap tube, or hooking it to the nasal cannula.  And doing that involves hanging off the bed at an uncomfortable and painful angle, or standing up.  Both of which are difficult and painful right now.  But yay oxygen!)

Annnnnd with a great deal of effort, I got the cannula hooked up.

(The problem is I have to switch back and forth between hooking the oxygen concentrator tube to the bipap tube, or hooking it to the nasal cannula.  And doing that involves hanging off the bed at an uncomfortable and painful angle, or standing up.  Both of which are difficult and painful right now.  But yay oxygen!)

9:19pm May 17, 2014

Just to celebrate my LACK OF BRAIN TUMOR again:

Technique: MRI of the head specifically targeted for evaluation of the pituitary with dynamics was performed utilizing the following sequences: Coronal and sagittal pre- and post-T1, coronal T2 fat-sat, and post contrast dynamic coronal T1. Postcontrast images were performed after the uneventful intravenous administration of 8 mL of gadolinium contrast.   

Findings:     The sella turcica is not enlarged.  The adenohypophysis is normal in size, without abnormal enhancement demonstrated.  The neurohypophysis is normal in appearance.  The infundibulum is normal caliber and midline in position.  The hypothalamus and optic chiasm are unremarkable.  The cavernous carotid flow voids are intact.  No abnormality of the sphenoid sinus is appreciated. A small mucosal retention cyst is present in the floor of the right maxillary sinus.   

Impression:   Normal contrast enhanced MRI of the pituitary gland.

Woot!

10:23am July 30, 2012
[Picture of a pale ear, and dark hair.] I did it. I stopped picking my ear long enough for it to heal. Before this, a huge area of it was a constantly open wound. Mostly on parts you can’t see, but spilling into visible parts as well. Both in the canal itself, and more outer areas. I was worried that whole time that it would get infected. Because a bad enough infection on your head can be really dangerous. Anyway it took a lot of work to stop it long enough to heal. Not always intense in the sense of white-knuckle determination, because that usually only makes picking worse. But certainly intense in terms of the fairly delicate work involved – more like balancing than anything. Anyway I’m greatly relieved. Now all I have to do is avoid ripping the skin off of there, which I’ve done even in the absence of anything wrong with it.

[Picture of a pale ear, and dark hair.]

I did it.

I stopped picking my ear long enough for it to heal.

Before this, a huge area of it was a constantly open wound. Mostly on parts you can’t see, but spilling into visible parts as well. Both in the canal itself, and more outer areas.

I was worried that whole time that it would get infected. Because a bad enough infection on your head can be really dangerous.

Anyway it took a lot of work to stop it long enough to heal. Not always intense in the sense of white-knuckle determination, because that usually only makes picking worse. But certainly intense in terms of the fairly delicate work involved – more like balancing than anything.

Anyway I’m greatly relieved. Now all I have to do is avoid ripping the skin off of there, which I’ve done even in the absence of anything wrong with it.